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This research project investigates the role of digital surveillance in contemporary health contexts, with a particular focus on how individuals experience, engage with, and influence surveillance practices. Moving beyond traditional top-down models, the project explores surveillance as a dynamic and participatory process, where individuals are not only objects but also active agents. 

By examining the “who” of surveillance, the project seeks to understand the lived realities of data collection and monitoring in healthcare and everyday life. It addresses critical questions around privacy, power, and autonomy in an increasingly data-driven society. 

Combining established methodologies with innovative approaches, the research draws on case studies to map the capabilities of surveillance technologies and to explore how individuals navigate, resist, or reshape these systems. The goal is to provide a nuanced understanding of the interplay between digital technologies and human agency in the health domain. 


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The research project is affiliated with the Center for Surveillance Research (CENSUS). The research center CENSUS conducts research and teaches in surveillance technologies and practices.

Carlsberg Fondet (Carlsberg Foundation) have supported the project with DKK 9,990,883. The grant was given under Semper Ardens Accomplish.