The Human Agency in Data-Intensive Surveillance project includes three PhD researchers exploring how we encounter surveillance through different aspects of our participation in the Danish welfare society.
Read more about the PhD projects in the short project descriptions below.
Polina Velyka's project explores how patients and care providers using remote health monitoring devices experience and morally interpret surveillance in everyday life. Through ethnographic fieldwork, interviews, and participant observation, the project investigates how monitoring technologies shape patients’ sense of agency, responsibility, and care.
Theoretically, the project draws on empirical care ethics, post-phenomenology, and surveillance studies. Situated within the Danish welfare context, the research investigates how technological mediation influences responsibility, agency, and the meaning of care.
Polina's aims include getting insights into how monitoring technologies reshape relationships between patients and healthcare providers, particularly regarding trust, transparency, and shared decision-making. The study may potentially contribute to post-phenomenological theory and surveillance studies by demonstrating how technology and human agency evolve in the context of healthcare surveillance.
Virginie Behar's project investigates how healthy individuals — often referred to as the "worried well" — engage with health data for preventive purposes through everyday technologies such as Apple Health and Fitbit in Denmark, where welfare policies increasingly promote self-tracking as part of preventive health efforts.
Grounded in surveillance studies and informed by postphenomenology, the project employs qualitative methods, including repeated in-depth interviews, diary studies, and walkthrough analysis, to examine how these interactions with self-tracking technologies shape and are shaped by the worried well’s everyday behaviors, health perceptions and approach to wellbeing and health prevention.
As such, it aims to shed light on how human agency is mediated and unfolds within the possibilities and constraints of data-intensive (self-)surveillance practices.